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Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Wednesday, January 16, 2013

The Field Has Been Fertilized… No Grass Yet

grass

It’s been a very long few months. I was not sorry to see the back end of 2012.  Last week I had what we hope to be my last radiation treatment for cancer in my salivary gland, and the weekend before Christmas saw my hair fly south for the rest of the winter.  I am bald, pale, weak, anemic, but alive.  I fully expect a cancer-free report the end of this week.

The bald thing is always an adventure for me. I won’t claim to look forward to being hairless.  But I’ve come to learn to live with it with a reasonable amount of tolerance.  It has some silver-lining aspects: getting ready is quicker, for one thing. I’ve also noticed that people who are in absolute denial, or at least determined indifference, become magically solicitous when confronted with a physical manifestation of illness.  Saying “Im tired and could use a bit of help” is an absolute waste of time.  Sigh with no hair and the same people who could not be bothered to bother offer to get you a ginger ale.

I think it’s guilt, to be honest.  I’m always perplexed by guilt-reactions. 

For the past few weeks every time my bald pate has shown a slight coloring to indicate hair trying to come in I’ve been disappointed to find a fine, ashy covering on my washcloth. Dark hair the consistency of espresso grounds comes in and falls back out.  This is new.  My eyebrows show no signs of returning at the moment, which makes it very difficult to be bitchy with real force, since I can’t scowl.  Sarcasm works better when you can lift one brow, too.  I feel crippled as a smart ass. You have no idea how traumatizing it is to be stripped of your best facial gears… particularly for a bitch like me.

Today there seems to be a slight sandyness up there.  I’ve been flipping through gardening websites and catalogs, and feel as though I’m putting a message into the universe.  As the Talmud says, “over every blade of grass there bends an angel whispering ‘grow.’”

floralhead GROW, dammit! I think my angel has laryngitis. I wonder if the Chia Pet people make something that would not give me a rash?  I could season my own salads right there at the table with a small pair of clippers… or fill the vase with blossoms.

Ok… maybe not.

Yeah… yeah, we’ll go with “NOT.”

Wednesday, October 03, 2012

The Gift of Cancer

hope

It probably seems terribly strange to read the words I used to title this blog post:

THE GIFT OF CANCER

How on earth could anyone see cancer as a gift? Yet I do. I’ve said it before, and I’m often fascinated by the responses, which range from astonishment to anger, and cover every shade in between. Were I not a many-times-survivor of cancer myself, I would not dare to use such a phrase. I suppose as I reflect on it, the angry response from other survivors is the most rational and understandable. I tend to reserve anger for things I can control, but that’s a habit that took a lifetime to develop.

Still, as I face a new round of slugging it out with Demon Cancer, I still view it as one of my life’s greatest gifts. Embracing that notion years ago also freed me to actually see that gift at work, and discover nuances and layers I’d not, otherwise, have found.

Though I cam close to dying in two of these past battles, that proximity also removed most of my fear of death. I certainly don’t want to go… but I can, without terror or agony in the departing. I know this because I laid my hand on that door a few times, and though my heart ached at the thought of leaving Ahmed, it was a journey I could have made. Both times I was ready, regretfully, to ease into that last sleep. So cancer has stripped me of the fear that most have. A great gift.

The worst part of a diagnosis like the one I got last week is not, for me, fearing I’ll lose the battle; it’s knowing I have to struggle my way back into that armor and do it. Radiation is a bitch. Losing hair is depressing. Having no energy and wanting to throw up all the time is certainly nothing to which I look forward. But unlike people who have not faced it before, I know that even in the darkest stretch, I’ll be able to see the finish line. Hope, for me, is not just a concept or a possibility. Hope is a lock. It will end. I’ve been here before, and know the way out. A great gift.

Knowing that path has allowed me to do talks, act as a mentor, and help others who are facing the disease or helping a loved one through it. Never in a million years would I have thought, as a young woman who spat fire and tackled the world in a rush, that I would one day be the calm in the center of anyone’s storm. Yet here I am… telling good people facing their worst fear it will be okay; and doing it with the weight of my experiences to bolster that belief. Filling in the empty cracks of empowerment that only another survivor can see: how to get the kids fed and safe, how to manage the schedule, what quirky symptoms the doctors won’t think to point out. Possibly the greatest of the gifts.

The people I have met—some I was so happy and grateful to help—have been amazing. Even the patients or loved ones I spend time with in waiting rooms, lobbies of the radiation center, sitting with an IV while the medicine drip-drip-drips… these people have been comforting, entertaining, educational, and sometimes challenging. But they have all been blessings. They’ve  all been tremendous gifts.

And, of course, had I not been getting regular checks on my lungs after beating lung cancer, I would already be dead and gone. They caught pulmonary fibrosis in it’s earliest stages, and that has allowed me to live beyond the normal span… I am already a statistical anomaly. I suppose, if I am on borrowed time anyway, the time, itself, is a gift. 

So today I am lucky, as I gird these saggy old loins for yet another battle. Tomorrow I will begin a course of intensive targeted radiation for a cancer in my salivary gland. I’ll get a cool mesh mask to cover my mug, and get to lay on a slap while a huge spooky space-age thingy circles my head. I’ll get sick, and almost certainly go bald. I’ll be tired. I’ll be weak. I’ll have depths of weepiness. It will end, and whatever hair I lose will grow back. All these things I know. What I don’t know is who I will meet to inspire me, what I will learn in the process, and how these will change me… these are the gifts coming my way.

Thank you, angels of waiting rooms and dark dreams, for the gifts I am about to receive.

Wednesday, February 01, 2012

Thanks SO MUCH, Beverly. I am praying for Phil.

AngelsEarth I got an email today that made me cry. In fact, I’m still crying. I was given permission by Beverly to share it with my readers.

Can I ask all my friends, family, and anyone out there in the blogosphere with a heart to add Phil to your prayers?  He can use them.  Maybe a whisper or two for Beverly, who must be feeling weary. And may angels continue to float through the halls of Dana Farber.

Dear Ms. Olinger,

I wanted to write to you to thank you for the short story, My Boyfriend's Back. A nurse at Dana Farber noticed me reading on my Kindle and wrote your name down on a piece of paper for me. I have been visiting the DF Cancer Institute with my husband for a few weeks, who is battling prostate cancer.  
I hope you don't mind if I share a small part of our story with you. Phil, my husband, was my crush when we went to high school together. That was 37 years ago, but we met up after years apart at our 20th high school reunion. Just like Rori and John! He was divorced and I had never married. We grew up three streets apart in Quincy. I always admired him, but was very shy. After sitting together at the reunion we began dating and were never apart again.
Your story reminded me so much of how lucky we were to find eachother, and how much Phil means to me. I also loved your angels! It made me wonder about every orderly, aide, nurse, and patient advocate we have met in this difficult time. How many are angels, like your Norman "Normiel" and his friends? I think all of them are!!
Phil is holding his own. I wanted to let you know that reading your story made me smile and laugh on a very hard day. My daughter bought me this Kindle for Christmas. I never thought I'd read on an ebook device. Boy, was I wrong! Thank you so much for making a bad day better. When I thanked the nurse she told me you were a very nice person who does a lot for families and survivors of cancer. That made me feel even better. I can just tell I'd like you very much. Waiting for your next stories eagerly.

Sincerely,
Beverly*

Brighton, MA

Blessings, and blessings, and grateful thanks to you, Beverly, for taking the time to write to me.  I’ll be praying for you and Phil with all my might.

*I deleted Beverly’s last name for her privacy.

Wednesday, April 09, 2008

I GOT BANGS!!

OMG I totally have bangs!!

Okay... they aren't particularly significant bangs, I will grant you. But just as the wee tips of the crosuses (err... crocai?) emerge from the damp, spring soil, so the weenie little fronds of hair are emerging from my dorky, much abused head. Check it out...



Compare. Contrast. Discuss.


So ok... they're only 1/8 of an inch long... err... maybe 1/16? Still... I'm kinda pumped! Yeah, baby-- that ground is still FERTILE!